Hi everyone! After eight weeks of intensive therapy, we are home for a week, before heading back for another month of outpatient therapy. The insurance is kicking us out of the hospital (they always try to save themselves money by cutting out benefits), but the doctors and therapies (and of course, mom) feel that Manuel’s treatment is not done here. He has not hit that plateau of no more progress, to justify the end of the therapies. We fought the insurance, obtaining a week extension for two consecutive weeks, but now they made their denial firm. We have decided to work around it as outpatient, and now we are waiting for that week after discharge to be able to start outpatient therapy. We will be staying at the Ronald McDonald House near Tampa General.
Manuel still making progress, all of them important, but the real surprise was at Hospital/Homebound School. He is taking classes three times a week, and they have been able to assess him, and it has been proven that he not only can read, but also is working on grade level in Algebra, Science, Vocabulary, and Spelling. This is amazing, considering the severity of his brain injury. He still can’t talk, but he responds by pointing to the answers with his right hand, the only one that he can control for now. We are working with a Dynavox, a device to try to communicate with Manuel more accurately. He still swallowing little bits at the time, but not enough to sustain him, therefore, we can’t remove the feeding tube just yet. I was able to obtain for him vitalStim therapy and E-stimulation, to try to retrain his facial muscles in order to improve his mouth control for eating and talking. He is 100% continent, and off the diapers!!! They also fitted him with leg braces, to help him with the walking. The neuropsychologist is amazed by the fact that having his mind so cognitively clear, he doesn’t show any signs of depression, anger, anxiety or frustration; in the contrary, he is a hard working kid that always displays a positive attitude and a great disposition, and never gives up. That is my Manuel Esteban!!!
I have imbedded in his head that we have no limits, only goals, and with God’s help and all the support and encouragement of the many people that love him, we will go as far as we need to go. For now, we are enjoying a little break to breathe at home, before we start the next phase of our journey. Thank you all for your continued interest in Manuel’s progress, but mainly, for not giving up in your prayers for Manuel and the rest of our family. Keep P.U.S.H.ing! Blessing to you all.
P.S. Enjoy the smile of a winner in the picture